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First Edition | February 2022
Research infrastructure & Resources
Catalyzing Multicentre Skin Research
A primary objective of SkIN Canada is to facilitate multicentre skin research and lower the barriers to initiating new projects. The network aims to advance investigator-initiated multicentre studies including longitudinal registries, observational studies, clinical trials, translational research, and biobanking partnerships.
To achieve this goal, SkIN Canada is developing resources for investigators and research sites interested in joining or leading multicentre studies:
Master Network Site Agreement: A collective agreement will emotively define the contractual terms of future non-interventional studies that will be conducted among network research sites. New studies will be governed by this master agreement, reducing the burden of the recurring, prolonged contracts review process that typically occurs with each new project.
Database Development Support Services: SkIN Canada will provide in-kind data management support to network research sites. Database administrators will work with research teams to develop and customize the REDCap data collection tools (including forms, surveys, dashboard design) required for their projects.
Library of Data Capture Forms: SkIN Canada will develop a library of validated data capture forms that can be cloned and adapted by research teams.
Knowledge Translation Assistance: SkIN Canada will use its multi-pronged communication and outreach apparatus to promote network-supported studies and disseminate their findings. This will amplify the exposure and impact of research conducted within the network.
Team Development Grants: Researchers will be able to apply for seed grants to develop new project teams and protocols. More information on these grants will be provided in the coming months.
These resources are under development and will be made available as they are finalized.
Rachael Manion is the Executive Director of the Canadian Skin Patient Alliance and the Canadian Association of Psoriasis Patients. She is also Chair of the Patient Advisory Council of the Skin Investigation Network of Canada (SkIN Canada) and a member of the Executive Committee. Drawing on her background as a lawyer and consultant, Rachael brings a strategic and creative approach to advocating for better patient care ………..
Early Career Investigator
Dr. Elena Netchiporouk obtained her medical degree from the Université de Montréal in 2012 and her Royal College of Physicians and Surgeons of Canada certified training in dermatology from McGill University in 2017. During her dermatology residency, she also completed a 3-year Master’s program in Experimental Medicine at McGill University. As a clinician scientist, she focuses her research on understanding the interaction between environment and ….
Catalyzing Multicentre Skin Research
SkIN Canada is developing a consortium of research sites that will collectively drive the formation of new multicentre research projects. Research sites in the federation will have access to a suite of resources that will make it significantly easier to implement skin research.
Training and Education Initiatives
Inspiring the future of skin research with talent development & education. The COVID-19 pandemic has reinvented the way we exchange knowledge, offering unique and equitable opportunities to connect virtually and educate skin researchers and patients across Canada. LEARN MORE
Canadian Network of Skin Trials (C-NeST) – Pilot Projects
To help establish a framework for coordinating multi-centre skin studies involving community and academic research sites, the clinical trials arm of SkIN Canada initiated two pilot non-interventional research projects.
The CAPP – CIHR-IMHA Studentships in Psoriatic Disease provide undergraduate and health professional students with opportunities to undertake research projects related to psoriatic diseases with established investigators in an environment that provides strong mentorship. We encourage applications from across Canada by April 11, 2022. The Canadian Association of Psoriasis Patients (CAPP) was formed in 2012 to serve people impacted by psoriasis and psoriatic arthritis. CAPP’s mission is to be a resource to these people by improving their quality of life, raising awareness, providing education, advocating for better access to care and treatments, and supporting research.
The Institute of Musculoskeletal Health and Arthritis (IMHA) funds health research in order to develop and support a well-trained base of investigators with the skills and expertise needed to design and conduct innovative and diverse research and knowledge translation activities aimed at improving health.
If you are a healthcare provider, we would like to hear your perspectives on medication use during infant feeding.
Patient research partners have recently written about tokenism in research partnerships with patients
– and most importantly, what can be done to address it. Learn more about how to meaningfully include patients and patient organizations as research partners.
The program will provide $20,000 of support to as many as eight trainees or students to conduct one year of mentored research in the field of pediatric dermatology. Applications are due March 31, 2022 for fellowships beginning on July 1, 2022. For additional information, including eligibility criteria and instructions on how to apply, please see the Research Fellowship RFA.