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A New Patient-Researcher Partnership for Research on Itch inSystemic Sclerosis

Lady Davis Institute for Medical Research
6 Sites
ON, QC
Brett Thombs

Brett Thombs

Itch is major problem for many people with scleroderma, a rare skin disease. However, little is known about it.

We will form a team of researchers, clinicians, and people with scleroderma to lay the groundwork for large, informative multi-centre studies on itch in scleroderma.

Our team includes Canadian and international leaders with expertise in itch and scleroderma, including dermatologists, rheumatologists; a cell biologist, a psychologist, a graduate student, and 3 people with scleroderma and itch.

We will develop a questionnaire to map the experience of living with itch in scleroderma. We will get feedback on the questionnaire from people with scleroderma to ensure it captures their experiences. We will also select standardize measures to compare difference aspects of itch in scleroderma to other conditions.

We will administer the questionnaire we develop and standardized measures to over 1,500 people with scleroderma in our  international cohort. What we learn will support additional research by our team and research by others to better understand itch in scleroderma and improve management options.

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