SkIN Canada

eBulletin

September 2023

Latest news and announcements

Skin Research Group of Canada (SRGC) 2023 – 10th Annual Conference, November 9-10

The 10th Annual SRGC conference will be held on 9-10 November 2023 jointly with SkIN Canada (Skin Investigation Network of Canada).

On behalf of the Scientific Organizing Committee of the SRGC, we would like to welcome you to the 2023 Skin Research Group of Canada’s 10th Annual Scientific Meeting.

As in years past, SRGC 2023 will serve to showcase the very best in Canadian basic science, translational, and clinical research on the skin.

The SRGC meeting will hold two workshops in collaboration with SkIN Canada. The two workshops are as follows:

1. Skin Canada Training Workshop 1 – Patient Research Engagement on Thursday November 9 at 4:00 PM EST.

2. Skin Canada Training Workshop 2 – Equity, Diversity and Inclusion on Friday November 10 at 4:00 PM EST.

Team Development Awards (Deadline January 15 2024)

SkIN Canada is providing funds to catalyze new multi-center teams pursuing novel skin research. These awards are intended to support preliminary activities that are typically not fundable as stand-alone projects. The deadline for the application is Monday January 15 2024 before 11:59 PM EST.

Canadian Institutes of Health Research (CIHR)-Institute of Musculoskeletal Health and Arthritis (IMHA) Inclusive Research Excellence Prize

Aaron Drucker, along with an international team of collaborators, won two CIHR-IMHA Inclusive Research Excellence Prizes of $25,000 each for the project “Living systematic review and network meta-analysis of systemic immunomodulatory treatments for atopic dermatitis.” The project provides up-to-date data comparing the effectiveness of different systemic treatments for atopic dermatitis, helping clinicians and patients understand the relative merits of medications including biologics and JAK inhibitors. The prizes were in the categories of Team Science, highlighting the importance of the multidisciplinary team, and Open Science, for making the data publicly accessible through www.EczemaTherapies.com

SkIN Canada would like to express a call for interest for volunteer positions available in the following committees with with SkIN Canada:

1. SkIN Canada Training Commitee: The SkIN Canada Training Committee is working on expanding the committee and is seeking a junior Faculty (within 10 years of University appointment at a Canadian University) to join the committee. We are also seeking trainees (graduate students or postdoctoral fellows) to join as members. The committee typically meets once a month and is responsible for the training and educational outreach of SkIN Canada. Please consider serving on this Committee for a rewarding experience.

2. SkIN Canada Translational Research Committee: The SkIN Canada Translational Research Committee is also working on expanding the committee and is seeking junior Faculty to join the committee as a Co-Chair.

3. SkIN Canada Steering Committee: The SkIN Canada Steering Committee is seeking trainees (graduate students or postdoctoral fellows to join the committee.

Interested candidates are encouraged to submit their CVs along with a brief statement on why they might be the best person for this position. For more information, please contact SkIN Canada at info@skincanada.org.

Did You Know?

SkIN Canada has launched a formal study intake process for investigators requesting support from the Network. Please visit our RESOURCES page for more information on how we can help with funding, patient engagement, database creation, project administration, ethics application, or statistical support. 

From the SkIN Canada Training Committee Hub

Application deadlines:
May 15 and October 15 every year

From the SkIN Canada Patient Engagement Hub

News from the CSPA

  • CSPA had a very productive summer on the advocacy front. from collaborating on multiple patient input submissions with different organizations to completing a federal pre budget submission.  
  • CSPA recently welcomed Maddy McCarville, Knowledge Translation Coordinator, to the team. Maddy holds a Master of Public Health focused on International Development and is an enthusiastic and talented addition to our organization.  

  • CSPA would like to thank our summer students Advocacy Coordinator, Daniel Benyamin, and Fundraising Coordinator, Georgia Fay, for their phenomenal contributions! CSPA gratefully knowledges the funding provided by the Canada Summer Jobs program.

  • As a member of the Patients Redefining the Future of Health Care in Canada’s Health Data Working Group, CSPA has endorsed the Declaration of Personal Health Data Rights in Canada. The Declaration aims to build consensus among patients, caregivers, citizens, and groups representing them; create awareness of health data-related issues in Canada; spur conversations; and inform policies and decision-making.

  • Eczema and conditions like anxiety and depression often go hand in hand.  CSPA is part of an international team that executed a global survey of 6,000 patients which showed that these two mental health conditions are a main reason for the dramatic drop in quality of life that eczema patients experience. This #WorldAtopicEczemaDay, we’re shedding light on the mental health impacts of eczema and advocating for more services and support for patients and their caregivers. It’s time to improve eczema care. Learn more at www.improveeczemacare.com

Public and Patient Engagement Initiative: Compensating Patient Partners in Research

 

The issue of compensating patient partners is a challenging area with many factors to consider. Some of these considerations include determining different forms and levels of payment for different roles, distinguishing between compensation and the coverage of expenses, and how to navigate these important discussions and decisions within research teams.

To complement this guidance, we have summarized the various compensation policies across the SPOR SUPPORT Units in Canada and provided links to additional compensation resources to inform these important discussions and decisions within research teams.

Join the Global Dermatology Research Revolution

As an essential contributor to dermatology patient care, you are invited to lend your support to the Global Research on the Impact of Dermatological Diseases (GRIDD) Study, which is focused on the collection of data from across the globe to demonstrate the impact of dermatological conditions on patient lives.   
 
In order to acquire this crucial impact data, GlobalSkin in collaboration with co-lead researchers Prof. Chris Bundy (Cardiff University) and Prof. Matthias Augustin (University Medical Centre Hamburg Eppendorf, Germany) developed the Patient-Reported Impact of Dermatological Diseases (PRIDD) measure. This scientifically robust tool is designed to assess the impact of conditions affecting the skin, hair, nails, and mucosa from the patient’s standpoint.  
 
GlobalSkin seeks the participation of 10,000 dermatological patients for the GRIDD Study, which consists of completing a 10–20-minute online survey. The survey is available in 17 languages and will be open from June 5 to December 31, 2023.
 
To play your part, please spread the word within your network and direct adult dermatology patients to this survey link https://globalskin.org/GRIDDStudy   
 
The importance of your role in making the GRIDD Study a success cannot be stressed enough. By leveraging your patient communities to participate in the study, you will be championing patient focused care and making a significant contribution in the advancement of enhanced treatment possibilities and health care policies. Your cooperation will also promote a holistic representation of dermatological conditions worldwide, pinpointing territories that require refined care, treatment advancements, and improved affordability of medication.    
 
This research has received ethical approval from Cardiff University. For further information, please visit https://globalskin.org/research
Generalized Pustular Psoriasis (GPP) Patient Summit

The Canadian Association of Psoriasis Patients, the Canadian Psoriasis Network and the Canadian Skin Patient Alliance are collaborating to organize a virtual event on how to better support patients in Canada living with generalized pustular psoriasis (GPP). If you live with GPP, or are caring for someone who does, please fill out this registration form shown below to be contacted for more information.

 

English registration form: https://forms.office.com/r/VagdesPr97
Formulaire d’inscription en français: https://forms.office.com/r/uyVstrmQQw

By participating, you’ll help to:

  • Inform Canadian skin patient organizations about the experiences of people with GPP in Canada and how they can best support the unique needs of GPP patients and their families.
  • Help Canadian skin patient organizations understand how to improve diagnosis, care, treatment, and supports for GPP patients and for rare skin disease patients in general.

The virtual summit will also be a unique opportunity for the GPP patient community in Canada to come together and connect with each other. A $25 gift certificate will be provided to participants as a token of thanks for your time and expertise.

Details:
Date: Wednesday October 4, 2023
Time: 5:00 PM EST (timing TBC)
Location: Zoom (details will be shared closer to the date)

If you have any questions, please contact us at executivedirector@cpn-rcp.com

News from other organizations

Welcome To Clinical Trials Ontario 2023 Conference!

The CTO Conference is a leading Canadian forum to drive innovation in clinical trials, including leaders from the pharmaceutical and medical device industries, academic and healthcare leaders, representatives from patient groups, health charities and research institutions.

This annual event provides a unique opportunity for members of our multi-stakeholder sector to collaborate, exchange knowledge and advance efforts to enhance the environment for clinical trials in Ontario and beyond.

We look forward to seeing you in Toronto!

Learn more about the conference at ctoconference.ca.

New publications by SkIN Canada members

Inflammatory Skin Conditions

1.         Zhu C, Gabrielli S, Khoury L, et al. Immunosenescence, Inflammaging and Dermatology: Insights and Opportunities. J Cutan Med Surg. Aug 18 2023:12034754231194009.https://www.ncbi.nlm.nih.gov/pubmed/37593990

2.         Papp KA, Blauvelt A, Puig L, et al. Long-term safety and efficacy of risankizumab for the treatment of moderate-to-severe plaque psoriasis: Interim analysis of the LIMMitless open-label extension trial up to 5 years of follow-up. J Am Acad Dermatol. Aug 6 2023.https://www.ncbi.nlm.nih.gov/pubmed/37553030

3.         Almuhanna N, Tobe SW, Alhusayen R. Risk of chronic kidney disease in hospitalized patients with hidradenitis suppurativa. Dermatology. Jul 24 2023.https://www.ncbi.nlm.nih.gov/pubmed/37487485

4.         Stein Gold LF, Bagel J, Tyring SK, et al. Comparison of risankizumab and apremilast for the treatment of adult patients with moderate plaque psoriasis eligible for systemic therapy: results from a randomised, open-label, assessor-blinded phase IV (IMMpulse) study. The British journal of dermatology. Jul 25 2023.https://www.ncbi.nlm.nih.gov/pubmed/37488811

5.         Gooderham MJ, Pink AE, Simpson EL, Silverberg JI, Guler E, Watkins M. Abrocitinib 100 mg Once Daily for Moderate-to-Severe Atopic Dermatitis: A Review of Efficacy and Safety, and Expert Opinion on Use in Clinical Practice. Dermatol Ther (Heidelb). Jul 23 2023.https://www.ncbi.nlm.nih.gov/pubmed/37482564

 

Wound Healing, Fibrosis and Regeneration

1.         Matthewman J, Tadrous M, Mansfield KE, et al. Association of Different Prescribing Patterns for Oral Corticosteroids With Fracture Preventive Care Among Older Adults in the UK and Ontario. JAMA Dermatol. Aug 9 2023.https://www.ncbi.nlm.nih.gov/pubmed/37556153
2.         Barayan D, Abdullahi A, Knuth CM, et al. Lactate Shuttling Drives the Browning of White Adipose Tissue after Burn Trauma. Am J Physiol Endocrinol Metab. Jul 5 2023.https://www.ncbi.nlm.nih.gov/pubmed/37406182
3.         Sibbald RG, Ayello E. Results of the 2022 Wound Survey on Skin Failure/End-of-Life Terminology and Pressure Injuries. Adv Skin Wound Care. Mar 1 2023;36(3):151-157.https://pubmed.ncbi.nlm.nih.gov/36812080/
4.         Dagher J, Arcand C, Auger FA, Germain L, Moulin VJ. The Self-Assembled Skin Substitute History: Successes, Challenges, and Current Treatment Indications. J Burn Care Res. Jan 2 2023;44(Supplement_1):S57-s64.https://pubmed.ncbi.nlm.nih.gov/36567476/
5.         Chogan F, Chen Y, Wood F, Jeschke MG. Skin Tissue Engineering Advances in Burns: A Brief Introduction to the Past, the Present, and the Future Potential. J Burn Care Res. Jan 2 2023;44(Supplement_1):S1-s4.https://pubmed.ncbi.nlm.nih.gov/36567473/

 

Skin and Other Cancers

1.         Venables ZC, Levell NJ. Caution required in interpreting primary care vitiligo skin cancer data. The Journal of investigative dermatology. Sep 8 2023.https://www.ncbi.nlm.nih.gov/pubmed/37690707
2.         Jeremian R, Xie P, Fotovati M, Lefrancois P, Litvinov IV. Gene-environment analyses in a UK Biobank skin cancer cohort identifies important SNPs in DNA repair genes that may help prognosticate disease risk. Cancer Epidemiol Biomarkers Prev. Aug 29 2023.https://www.ncbi.nlm.nih.gov/pubmed/37642678
3.         Muntyanu A, Nechaev V, Pastukhova E, et al. Burden and geographic distribution of oral cavity and oropharyngeal cancers in the Russian Federation. Frontiers in oncology. 2023;13:1197287.https://www.ncbi.nlm.nih.gov/pubmed/37601694
4.         Muntyanu A, Ghazawi FM, Pastukhova E, Zubarev A, Litvinov IV. National trends in incidence and geographic distribution of melanoma and keratinocyte carcinoma in the Russian Federation. Frontiers in medicine. 2023;10:1188038.https://www.ncbi.nlm.nih.gov/pubmed/37547610
5.         Conte S, Aldien AS, Jette S, et al. Skin Cancer Prevention across the G7, Australia and New Zealand: A Review of Legislation and Guidelines. Curr Oncol. Jun 23 2023;30(7):6019-6040.https://www.ncbi.nlm.nih.gov/pubmed/37489567

 

Other

1.         Kjaldgaard L, Cristall N, Gawaziuk JP, Kohja Z, Logsetty S. Predictors of Mortality in Patients With Necrotizing Fasciitis: A Literature Review and Multivariate Analysis. Plast Surg (Oakv). Aug 2023;31(3):221-228.https://www.ncbi.nlm.nih.gov/pubmed/37654537

2.         Grimshaw JM, Levinson W. Reducing low value care: opportunities and challenges for Choosing Wisely campaigns. BMJ Evid Based Med. Aug 16 2023.https://www.ncbi.nlm.nih.gov/pubmed/37586873

3.         Joly-Chevrier M, Nguyen AX, Lesko-Krleza M, Lefrancois P. Performance of ChatGPT on a Practice Dermatology Board Certification Examination. J Cutan Med Surg. Jul 25 2023:12034754231188437.https://www.ncbi.nlm.nih.gov/pubmed/37489920

4.         Akuffo-Addo E, Joseph M. Racial Representation in Dermatology Clinical Trials, a Canadian Perspective. J Eur Acad Dermatol Venereol. Jul 9 2023.https://www.ncbi.nlm.nih.gov/pubmed/37422713

5.         Lagace F, D’Aguanno K, Prosty C, et al. The Role of Sex and Gender in Dermatology – From Pathogenesis to Clinical Implications. J Cutan Med Surg. Jul 4 2023:12034754231177582.https://www.ncbi.nlm.nih.gov/pubmed/37401812

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