Patient engagement in research workshop
Friday NOV 12, 2021 (1:00 – 2:50PM)
PATIENT ENGAGEMENT IN RESEARCH: TOP TIPS FOR WORKING WITH PATIENT ORGANIZATIONS
Executive Director; Canadian Skin Patient Alliance, Canadian Association of Psoriasis Patients Co-director; Skin Investigation Network of Canada
Rachael Manion is the Chair of the Patient Advisory Council of the Skin Investigation Network of Canada (SkIN Canada) and the Executive Director of the Canadian Skin Patient Alliance and the Canadian Association of Psoriasis Patients. Drawing on her background as a lawyer and consultant, Rachael brings a strategic and creative approach to advocating for better patient care and is committed to enhancing patient engagement in research.
CLINICAL TRIALS ONTARIO – PATIENT DECISION AID
An Introduction to Patient-Oriented Research: A Case Study and Resources to Help You.
Dawn Richards, David Wells and Monica Parry
Join us to learn about patient-oriented research: what it is, common terms, and how you might consider this within the context of your own research project. The session will be hosted by members of a patient-oriented research team, and includes a clinician-researcher, a person who lives with diabetes, and a person who works to engage patients in projects at a not for profit clinical trials organization. The team will help you learn about patient-oriented research through sharing a case study of a research project that has resulted in tools to help you carry out research this way. There will be lots of time to reflect on your own work and ask plenty of questions.
Dawn Richards, PhD
Director, Patient and Public Engagement
Clinical Trials Ontario
Dawn Richards, PhD, is the founder of Five02 Labs Inc., and Director of Patient and Public Engagement at Clinical Trials Ontario. With a PhD (Analytical Chemistry) from the University of Alberta, and experience in a variety of roles during the past 20 years, it is her diagnosis with rheumatoid arthritis ten years ago that instigated a journey to combine her passion for science with making the most of her diagnosis. In her role at CTO, Dawn is charged with executing on CTO’s strategic pillar of patient and public engagement.
David Ernest Wells
David is a patient partner with Diabetes Action Canada, the Maritime SPOR Support Unit , and Patients for Patient Safety Canada (associated with Healthcare Excellence Canada). He lives in Fredericton, New Brunswick, and turned 82 years old on 2021-06-29. From 2005-2011 Dave chaired the New Brunswick Surgical Care Network Advisory Committee, which designed and implemented new procedures that reduced surgical wait times in New Brunswick 50% to 70%. During 2012-2015 Dave was the patient representative on the New Brunswick Primary Health Care Steering Committee, which changed the delivery of primary health care in New Brunswick by producing an extensive Guidelines document adopted for Family Medicine New Brunswick in 2017. In 2019 he qualified as a Certified Professional in Healthcare Information and Management Systems (CPHIMS-CA) with Digital Health Canada.
Monica Parry, MEd, MSc, NP-Adult, PhD, CCN(C)
Visiting Associate Professor, Central South University, China
Associate Professor, Lawrence S. Bloomberg Faculty of Nursing
Dr. Parry is an Associate Professor at the Lawrence S. Bloomberg Faculty of Nursing and a Nurse Practitioner in the cardiac program at Kingston Health Sciences Centre. Monica’s program of research focuses on patient engagement and the sex/gendered factors that impact the burden of cardiovascular disease. Current funded studies are focused on developing and systematically evaluating a digital health intervention (at heart) for women with heart disease. Monica is a Co-I in the SPOR Network focused on Diabetes and its Complications (Diabetes Action Canada), CIHR’s e-Health Innovation Project focused on Technology-Enabled Remote Monitoring and Self-Management, and in GOING-FWD: Gender Outcomes International Group: to Further Well-being Development. In collaboration with Clinical Trials Ontario, Monica has also been co-leading CIHR and OSSU-funded studies to systematically develop and test digital patient partner and investigator decision aids designed to increase patient-investigator partnerships in research. She is a member of CIHR’s College of Reviewers, the Banting & Best Diabetes Centre, and the Toronto Health Economics and Technology Assessment Collaborative.