September 2023
Skin Research Group of Canada (SRGC) 2023 – 10th Annual Conference, November 9-10
The 10th Annual SRGC conference will be held on 9-10 November 2023 jointly with SkIN Canada (Skin Investigation Network of Canada).
On behalf of the Scientific Organizing Committee of the SRGC, we would like to welcome you to the 2023 Skin Research Group of Canada’s 10th Annual Scientific Meeting.
As in years past, SRGC 2023 will serve to showcase the very best in Canadian basic science, translational, and clinical research on the skin.
The SRGC meeting will hold two workshops in collaboration with SkIN Canada. The two workshops are as follows:
1. Skin Canada Training Workshop 1 – Patient Research Engagement on Thursday November 9 at 4:00 PM EST.
2. Skin Canada Training Workshop 2 – Equity, Diversity and Inclusion on Friday November 10 at 4:00 PM EST.
Team Development Awards (Deadline January 15 2024)
SkIN Canada is providing funds to catalyze new multi-center teams pursuing novel skin research. These awards are intended to support preliminary activities that are typically not fundable as stand-alone projects. The deadline for the application is Monday January 15 2024 before 11:59 PM EST.
Canadian Institutes of Health Research (CIHR)-Institute of Musculoskeletal Health and Arthritis (IMHA) Inclusive Research Excellence Prize
Aaron Drucker, along with an international team of collaborators, won two CIHR-IMHA Inclusive Research Excellence Prizes of $25,000 each for the project “Living systematic review and network meta-analysis of systemic immunomodulatory treatments for atopic dermatitis.” The project provides up-to-date data comparing the effectiveness of different systemic treatments for atopic dermatitis, helping clinicians and patients understand the relative merits of medications including biologics and JAK inhibitors. The prizes were in the categories of Team Science, highlighting the importance of the multidisciplinary team, and Open Science, for making the data publicly accessible through www.EczemaTherapies.com
SkIN Canada would like to express a call for interest for volunteer positions available in the following committees with with SkIN Canada:
1. SkIN Canada Training Commitee: The SkIN Canada Training Committee is working on expanding the committee and is seeking a junior Faculty (within 10 years of University appointment at a Canadian University) to join the committee. We are also seeking trainees (graduate students or postdoctoral fellows) to join as members. The committee typically meets once a month and is responsible for the training and educational outreach of SkIN Canada. Please consider serving on this Committee for a rewarding experience.
2. SkIN Canada Translational Research Committee: The SkIN Canada Translational Research Committee is also working on expanding the committee and is seeking junior Faculty to join the committee as a Co-Chair.
3. SkIN Canada Steering Committee: The SkIN Canada Steering Committee is seeking trainees (graduate students or postdoctoral fellows to join the committee.
Interested candidates are encouraged to submit their CVs along with a brief statement on why they might be the best person for this position. For more information, please contact SkIN Canada at info@skincanada.org.
Did You Know?
SkIN Canada has launched a formal study intake process for investigators requesting support from the Network. Please visit our RESOURCES page for more information on how we can help with funding, patient engagement, database creation, project administration, ethics application, or statistical support.
From the SkIN Canada Training Committee Hub
Application deadlines:
May 15 and October 15 every year
From the SkIN Canada Patient Engagement Hub
News from the CSPA
- CSPA had a very productive summer on the advocacy front. from collaborating on multiple patient input submissions with different organizations to completing a federal pre budget submission.
- CSPA recently welcomed Maddy McCarville, Knowledge Translation Coordinator, to the team. Maddy holds a Master of Public Health focused on International Development and is an enthusiastic and talented addition to our organization.
- CSPA would like to thank our summer students Advocacy Coordinator, Daniel Benyamin, and Fundraising Coordinator, Georgia Fay, for their phenomenal contributions! CSPA gratefully knowledges the funding provided by the Canada Summer Jobs program.
- As a member of the Patients Redefining the Future of Health Care in Canada’s Health Data Working Group, CSPA has endorsed the Declaration of Personal Health Data Rights in Canada. The Declaration aims to build consensus among patients, caregivers, citizens, and groups representing them; create awareness of health data-related issues in Canada; spur conversations; and inform policies and decision-making.
- Eczema and conditions like anxiety and depression often go hand in hand. CSPA is part of an international team that executed a global survey of 6,000 patients which showed that these two mental health conditions are a main reason for the dramatic drop in quality of life that eczema patients experience. This #WorldAtopicEczemaDay, we’re shedding light on the mental health impacts of eczema and advocating for more services and support for patients and their caregivers. It’s time to improve eczema care. Learn more at www.improveeczemacare.com
Public and Patient Engagement Initiative: Compensating Patient Partners in Research
The issue of compensating patient partners is a challenging area with many factors to consider. Some of these considerations include determining different forms and levels of payment for different roles, distinguishing between compensation and the coverage of expenses, and how to navigate these important discussions and decisions within research teams.
To complement this guidance, we have summarized the various compensation policies across the SPOR SUPPORT Units in Canada and provided links to additional compensation resources to inform these important discussions and decisions within research teams.
Join the Global Dermatology Research Revolution
As an essential contributor to dermatology patient care, you are invited to lend your support to the Global Research on the Impact of Dermatological Diseases (GRIDD) Study, which is focused on the collection of data from across the globe to demonstrate the impact of dermatological conditions on patient lives.
In order to acquire this crucial impact data, GlobalSkin in collaboration with co-lead researchers Prof. Chris Bundy (Cardiff University) and Prof. Matthias Augustin (University Medical Centre Hamburg Eppendorf, Germany) developed the Patient-Reported Impact of Dermatological Diseases (PRIDD) measure. This scientifically robust tool is designed to assess the impact of conditions affecting the skin, hair, nails, and mucosa from the patient’s standpoint.
GlobalSkin seeks the participation of 10,000 dermatological patients for the GRIDD Study, which consists of completing a 10–20-minute online survey. The survey is available in 17 languages and will be open from June 5 to December 31, 2023.
To play your part, please spread the word within your network and direct adult dermatology patients to this survey link https://globalskin.org/
The importance of your role in making the GRIDD Study a success cannot be stressed enough. By leveraging your patient communities to participate in the study, you will be championing patient focused care and making a significant contribution in the advancement of enhanced treatment possibilities and health care policies. Your cooperation will also promote a holistic representation of dermatological conditions worldwide, pinpointing territories that require refined care, treatment advancements, and improved affordability of medication.
This research has received ethical approval from Cardiff University. For further information, please visit https://globalskin.org/
Generalized Pustular Psoriasis (GPP) Patient Summit
The Canadian Association of Psoriasis Patients, the Canadian Psoriasis Network and the Canadian Skin Patient Alliance are collaborating to organize a virtual event on how to better support patients in Canada living with generalized pustular psoriasis (GPP). If you live with GPP, or are caring for someone who does, please fill out this registration form shown below to be contacted for more information.
English registration form: https://forms.office.
Formulaire d’inscription en français: https://forms.
By participating, you’ll help to:
- Inform Canadian skin patient organizations about the experiences of people with GPP in Canada and how they can best support the unique needs of GPP patients and their families.
- Help Canadian skin patient organizations understand how to improve diagnosis, care, treatment, and supports for GPP patients and for rare skin disease patients in general.
The virtual summit will also be a unique opportunity for the GPP patient community in Canada to come together and connect with each other. A $25 gift certificate will be provided to participants as a token of thanks for your time and expertise.
Details:
Date: Wednesday October 4, 2023
Time: 5:00 PM EST (timing TBC)
Location: Zoom (details will be shared closer to the date)
If you have any questions, please contact us at executivedirector@cpn-rcp.com
News from other organizations
Welcome To Clinical Trials Ontario 2023 Conference!
The CTO Conference is a leading Canadian forum to drive innovation in clinical trials, including leaders from the pharmaceutical and medical device industries, academic and healthcare leaders, representatives from patient groups, health charities and research institutions.
This annual event provides a unique opportunity for members of our multi-stakeholder sector to collaborate, exchange knowledge and advance efforts to enhance the environment for clinical trials in Ontario and beyond.
We look forward to seeing you in Toronto!
Learn more about the conference at ctoconference.ca.
New publications by SkIN Canada members
Inflammatory Skin Conditions
1.
Hundal S, Cappelli J, Croitoru D. Hundal S, Cappelli J, Croitoru D, et al. Cost-Utility Analysis of Clinic-Based Deroofing versus Local Excision for Hidradenitis Suppurativa. J Am Acad Dermatol. Dec 8 2024;.
https://www.ncbi.nlm.nih.gov/pubmed/39657847
2.
Vallee S, Deneux V, Funaro D. Vallee S, Deneux V, Funaro D, et al. Long-term evolution of prepubertal-onset anogenital lichen sclerosus: A 35-year retrospective and cross-sectional study from a single tertiary care maternal and pediatric center. J Am Acad Dermatol. Dec 3 2024;.
https://www.ncbi.nlm.nih.gov/pubmed/39637982
3.
Eichenfield LF, Hebert AA, Harper JC. Eichenfield LF, Hebert AA, Harper JC, et al. Triple-Combination Clindamycin Phosphate 1.2%/Adapalene 0.15%/Benzoyl Peroxide 3.1% Gel for Moderate-to-Severe Acne in Children and Adolescents. J Drugs Dermatol. Dec 1 2024;23(12):1049-1057..
https://www.ncbi.nlm.nih.gov/pubmed/39630680
4.
Armstrong AW, Bissonnette R, Chovatiya R. Armstrong AW, Bissonnette R, Chovatiya R, et al. Treat-to-Target Outcomes With Tapinarof Cream 1% in Phase 3 Trials for Plaque Psoriasis. Cutis. Oct 2024;114(4):122-127..
https://www.ncbi.nlm.nih.gov/pubmed/39621574
5.
Choi UE, Deng J, Parthasarathy V. Choi UE, Deng J, Parthasarathy V, et al. Risk factors and temporal associations of progression of the atopic march in children with early-onset atopic dermatitis. J Am Acad Dermatol. Nov 28 2024;.
https://www.ncbi.nlm.nih.gov/pubmed/39615548
Wound Healing, Fibrosis and Regeneration
1.
Bian X, Piipponen M, Liu Z. Bian X, Piipponen M, Liu Z, et al. Epigenetic memory of radiotherapy in dermal fibroblasts impairs wound repair capacity in cancer survivors. Nature communications. Oct 28 2024;15(1):9286..
https://www.ncbi.nlm.nih.gov/pubmed/39468077
2.
Arif S, Larochelle S, Trudel B. Arif S, Larochelle S, Trudel B, et al. The diffusion of normal skin wound myofibroblast-derived microvesicles differs according to matrix composition. J Extracell Biol. Jan 2024;3(1):e131..
https://www.ncbi.nlm.nih.gov/pubmed/38938680
3.
Arif S, Larochelle S, Trudel B. Arif S, Larochelle S, Trudel B, et al. The diffusion of normal skin wound myofibroblast-derived microvesicles differs according to matrix composition. J Extracell Biol. Jan 2024;3(1):e131..
https://www.ncbi.nlm.nih.gov/pubmed/38938680
4.
Arif S, Richer M, Larochelle S, Moulin VJ. Arif S, Richer M, Larochelle S, Moulin VJ. Microvesicles derived from dermal myofibroblasts modify the integrity of the blood and lymphatic barriers using distinct endocytosis pathways. J Extracell Biol. May 2024;3(5):e151..
https://www.ncbi.nlm.nih.gov/pubmed/38939570
5.
Rijal H, Bouadi N, Piguet V, Mukovozov I. Rijal H, Bouadi N, Piguet V, Mukovozov I. Treatment Outcomes of Scleroderma With Janus Kinase Inhibitors: A Systematic Review. J Cutan Med Surg. Jun 10 2024:12034754241260021..
https://www.ncbi.nlm.nih.gov/pubmed/38859662
Skin Cancer
1.
Guerra Ordaz DJ, Whitelaw S, Kaouache M. Guerra Ordaz DJ, Whitelaw S, Kaouache M, et al. Evaluating the Implementation and Impact of BRAF Reflex Mutation Testing in Melanoma, Lung, and Colorectal Cancers. J Cutan Med Surg. Dec 4 2024:12034754241302821..
https://www.ncbi.nlm.nih.gov/pubmed/39629857
2.
Koulmi K, Cattelan L, Litvinov IV. Koulmi K, Cattelan L, Litvinov IV. Evaluating Difluoromethylornithine Safety and Efficacy for Non-Melanoma Skin Cancer Chemoprevention: A Systematic Review. J Cutan Med Surg. Nov 30 2024:12034754241302818..
https://www.ncbi.nlm.nih.gov/pubmed/39614759
3.
Huang Y, Fleming P, Fung K, Chan AW. Huang Y, Fleming P, Fung K, Chan AW. Response to Tang et al., “Insufficient evidence for association between dermatology follow-up and melanoma survival”. J Am Acad Dermatol. Nov 21 2024;.
https://www.ncbi.nlm.nih.gov/pubmed/39579995
4.
Ma B, James MT, Chan AW, Mydlarski PR. Ma B, James MT, Chan AW, Mydlarski PR. National Trends in Healthcare Expenditures for the Management of Skin Cancer in the United States. J Cutan Med Surg. Nov 16 2024:12034754241293131..
https://www.ncbi.nlm.nih.gov/pubmed/39548853
5.
Karponis D, Joshy J, Stratigos IA. Karponis D, Joshy J, Stratigos IA, et al. Cutaneous melanoma in situ: a review. Clin Exp Dermatol. Oct 25 2024;.
https://www.ncbi.nlm.nih.gov/pubmed/39449583
Other
1.
Hedtrich S, Calderon M. Hedtrich S, Calderon M. Next generation concepts in dermal delivery, theranostics, and preclinical testing. Adv Drug Deliv Rev. Nov 29 2024:115482..
https://www.ncbi.nlm.nih.gov/pubmed/39617255
2.
Coughlan K, Purvis T, Kilkenny MF. Coughlan K, Purvis T, Kilkenny MF, et al. From ‘strong recommendation’ to practice: A pre-test post-test study examining adherence to stroke guidelines for fever, hyperglycaemia, and swallowing (FeSS) management post-stroke. Int J Nurs Stud Adv. Dec 2024;7:100248..
https://www.ncbi.nlm.nih.gov/pubmed/39507681
3.
Gupta AK, Talukder M, Piguet V. Gupta AK, Talukder M, Piguet V. Mpox: A Rising Threat-2 Public Health Emergencies in 2 Years. The Journal of investigative dermatology. Oct 21 2024;.
https://www.ncbi.nlm.nih.gov/pubmed/39436346
4.
Dinesh NEH, Rousseau J, Mosher DF. Dinesh NEH, Rousseau J, Mosher DF, et al. Mutations in fibronectin dysregulate chondrogenesis in skeletal dysplasia. Cellular and molecular life sciences : CMLS. Oct 5 2024;81(1):419..
https://www.ncbi.nlm.nih.gov/pubmed/39367925
5.
Savard E, Magne B, Simard-Bisson C. Savard E, Magne B, Simard-Bisson C, et al. Design of an innovative method for measuring the contractile behaviour of engineered tissues. Tissue engineering Part C, Methods. Sep 23 2024;.
https://www.ncbi.nlm.nih.gov/pubmed/39311467
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